Comments for Created By Parents http://www.createdbyparents.com HFHC's Information Site Wed, 09 May 2012 17:38:48 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Thank You to The Rock Foundation by laura desavary http://www.createdbyparents.com/?p=931#comment-222 laura desavary Wed, 09 May 2012 17:38:48 +0000 http://www.createdbyparents.com/?p=931#comment-222 cool cool

]]> Comment on Residential Care vs Supported Living by Julia Johnson http://www.createdbyparents.com/?p=316#comment-220 Julia Johnson Tue, 08 May 2012 10:37:07 +0000 http://www.hfhcinfocentre.com/?p=316#comment-220 Hi Paul and family, Your webite is very welcome in my world - thank you. I would like to comment on your residential v supported living debate as it is something that is causing me sleepless nights for two main reasons; 1. I am the parent of a child who is currently in a residential placement 2. I work for a disability charity who are currently going all out to push supported living on the premise that; "it gives the customer more choice". My stand on it it this; all decisions should be made from a person centred perspective. For some it may be that supported living is the best option - for others it may be residential services. It really does depend on the individual. I totally agree also with your comment that both residential and supported living places can vary in quality and it is certainly not the case that one type of service is always better than the other. Our daughter has a very complex learning disability and I would consider her to be at the more extreme end of the spectrum. As a result she is unable to tell us what provision she would prefer and so as her parents - those with her best interests at heart - we have to do our best to work that out using a person centred approach. We do not believe this should be limited to a choice of supported living environments and yet we have been told that it is and that within the next two years we need to choose somewhere for her to be moved to. I find it ironic that the current trend towards supported living is often supported by the claim that it offers more choice to customers/clients when these customers/clients are bieng removed from their current residential provision. How is that giving them a choice? The fact that I also work for a charity who go along with this trend just adds to my frustration and sits very uncomfortably with me. I thought the days of 'one policy fits all' had gone and to me the idea that everyone should move into supported living is no more acceptable than saying that everyone should live in a residential setting. In summary I ask that everyone tries to consider this from a person centred perspective and to understand that for some a residential setting can offer a safe haven especially for those who find the wider world a very confusing and scary place. Hi Paul and family,

Your webite is very welcome in my world – thank you.

I would like to comment on your residential v supported living debate as it is something that is causing me sleepless nights for two main reasons;

1. I am the parent of a child who is currently in a residential placement
2. I work for a disability charity who are currently going all out to push supported living on the premise that; “it gives the customer more choice”.

My stand on it it this; all decisions should be made from a person centred perspective. For some it may be that supported living is the best option – for others it may be residential services. It really does depend on the individual. I totally agree also with your comment that both residential and supported living places can vary in quality and it is certainly not the case that one type of service is always better than the other.

Our daughter has a very complex learning disability and I would consider her to be at the more extreme end of the spectrum. As a result she is unable to tell us what provision she would prefer and so as her parents – those with her best interests at heart – we have to do our best to work that out using a person centred approach. We do not believe this should be limited to a choice of supported living environments and yet we have been told that it is and that within the next two years we need to choose somewhere for her to be moved to.

I find it ironic that the current trend towards supported living is often supported by the claim that it offers more choice to customers/clients when these customers/clients are bieng removed from their current residential provision. How is that giving them a choice?

The fact that I also work for a charity who go along with this trend just adds to my frustration and sits very uncomfortably with me. I thought the days of ‘one policy fits all’ had gone and to me the idea that everyone should move into supported living is no more acceptable than saying that everyone should live in a residential setting.

In summary I ask that everyone tries to consider this from a person centred perspective and to understand that for some a residential setting can offer a safe haven especially for those who find the wider world a very confusing and scary place.

]]> Comment on Transition Step 1: Starting the Process by Transition Step 3: Access to Funding : Created By Parents http://www.createdbyparents.com/?p=967#comment-197 Transition Step 3: Access to Funding : Created By Parents Mon, 23 Apr 2012 14:41:17 +0000 http://www.createdbyparents.com/?p=967#comment-197 [...] Read Transition Step 1: Starting the Process [...] [...] Read Transition Step 1: Starting the Process [...]

]]> Comment on Transition Step 2: Getting the Right Assessment by Sheila Kingdom http://www.createdbyparents.com/?p=970#comment-191 Sheila Kingdom Sun, 22 Apr 2012 10:08:34 +0000 http://www.createdbyparents.com/?p=970#comment-191 Absolutely! The Transition process should be clearly "marked out" for everyone and timescales adhered to throughout. It should be built in to care planning and identified as a specific item on the agenda of all review meetings from age 14 onwards. I have always felt it's importance has been minimised by many participants and that parents/significant others who express concern are left to feel that they are "worrying unnecessarily". The gulf between children's services, college services and adult services is unacceptable - good care planning should involve the development of a seamless and far sighted cohesive plan; the role of an independent keyworker/advocate is essential. I speak as a parent and a former care manager! These guides should be published and distributed to all social workers, care managers and parents! Absolutely!
The Transition process should be clearly “marked out” for everyone and timescales adhered to throughout. It should be built in to care planning and identified as a specific item on the agenda of all review meetings from age 14 onwards.
I have always felt it’s importance has been minimised by many participants and that parents/significant others who express concern are left to feel that they are “worrying unnecessarily”.
The gulf between children’s services, college services and adult services is unacceptable – good care planning should involve the development of a seamless and far sighted cohesive plan; the role of an independent keyworker/advocate is essential. I speak as a parent and a former care manager! These guides should be published and distributed to all social workers, care managers and parents!

]]> Comment on Contact Us by The Transition Process : Created By Parents http://www.createdbyparents.com/?page_id=91#comment-186 The Transition Process : Created By Parents Tue, 17 Apr 2012 09:33:50 +0000 http://www.hfhcinfocentre.com/?page_id=91#comment-186 [...] Created By Parents HomeAbout UsAt a Glance: Top 10 Tips Series10 Questions for Care Providers10 Tips for Running Transition EventsSpotlight OnAutism & TransitionDuty of Care vs ChoiceResidential Care vs Supported LivingResidential CollegesSupport vs CareUseful LinksContact Us [...] [...] Created By Parents HomeAbout UsAt a Glance: Top 10 Tips Series10 Questions for Care Providers10 Tips for Running Transition EventsSpotlight OnAutism & TransitionDuty of Care vs ChoiceResidential Care vs Supported LivingResidential CollegesSupport vs CareUseful LinksContact Us [...]

]]> Comment on Transition Step 3: Access to Funding by Transition Step 5: What Happens Afterwards : Created By Parents http://www.createdbyparents.com/?p=978#comment-185 Transition Step 5: What Happens Afterwards : Created By Parents Tue, 17 Apr 2012 09:09:44 +0000 http://www.createdbyparents.com/?p=978#comment-185 [...] Read Transition Step 3: Access to Funding [...] [...] Read Transition Step 3: Access to Funding [...]

]]> Comment on Transition Step 1: Starting the Process by Transition Step 2: Getting the Right Assessment : Created By Parents http://www.createdbyparents.com/?p=967#comment-184 Transition Step 2: Getting the Right Assessment : Created By Parents Tue, 17 Apr 2012 09:08:06 +0000 http://www.createdbyparents.com/?p=967#comment-184 [...] Read Transition Step 1: Starting the Process [...] [...] Read Transition Step 1: Starting the Process [...]

]]> Comment on Transition Step 2: Getting the Right Assessment by Transition Step 4: What Makes A Good Transition Into A Home : Created By Parents http://www.createdbyparents.com/?p=970#comment-183 Transition Step 4: What Makes A Good Transition Into A Home : Created By Parents Tue, 17 Apr 2012 09:06:15 +0000 http://www.createdbyparents.com/?p=970#comment-183 [...] Read Transition Step 2: Getting the Right Assessment [...] [...] Read Transition Step 2: Getting the Right Assessment [...]

]]> Comment on Transition Step 2: Getting the Right Assessment by Transition Step 5: What Happens Afterwards : Created By Parents http://www.createdbyparents.com/?p=970#comment-182 Transition Step 5: What Happens Afterwards : Created By Parents Tue, 17 Apr 2012 09:05:36 +0000 http://www.createdbyparents.com/?p=970#comment-182 [...] Read Transition Step 2: Getting the Right Assessment [...] [...] Read Transition Step 2: Getting the Right Assessment [...]

]]> Comment on Transition Step 3: Access to Funding by Transition Step 1: Starting the Process : Created By Parents http://www.createdbyparents.com/?p=978#comment-181 Transition Step 1: Starting the Process : Created By Parents Tue, 17 Apr 2012 09:04:40 +0000 http://www.createdbyparents.com/?p=978#comment-181 [...] Read Transition Step 3: Access to Funding [...] [...] Read Transition Step 3: Access to Funding [...]

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